Author · Speaker · Rare Disease Patient Advocate
From the boardroom to a neck brace.
For more than 25 years, I led global teams in audit, governance, and tech. Then a rare disease unraveled the life I knew.
I’m what medicine calls a zebra: rare and routinely dismissed.
From the boardroom to a neck brace.
For more than 25 years, I led global teams in audit, governance, and tech. Then a rare disease unraveled the life I knew.
I’m what medicine calls a zebra: rare and routinely dismissed.
From the boardroom to a neck brace.
For more than 25 years, I led global teams in audit, governance, and tech. Then a rare disease unraveled the life I knew.
I’m what medicine calls a zebra: rare and routinely dismissed.
Rare Unveiled: A Memoir
20 months. 26 specialists. 111 appointments.
First book in the You Might Be a Zebra series
Rare Unveiled:
A Memoir
20 months. 26 specialists.
111 appointments.
First book in the You Might Be a Zebra series
If you are looking to book Monica for a speaking engagement, media appearance or professional collaboration, please reach out. Topics include rare disease, chronic illness, patient advocacy, and the lived experience of CCI, Chiari, Tethered Cord and hEDS.
If you are looking to book Monica for a speaking engagement, media appearance or professional collaboration, please reach out. Topics include rare disease, chronic illness, patient advocacy, and the lived experience of CCI, Chiari, Tethered Cord, and hEDS.